The aim of the EuroSpA Research Collaboration Network
The aim of the EuroSpA Research Collaboration Network (RCN) is to jointly address research questions in SpA including, but not limited to, real world effectiveness and safety profiles of biologic therapies. This is done by retrospectively and prospectively collecting real life patient data from European registers.
The collaboration promotes opportunities to identify unmet needs in the treatment of SpA patients by utilizing high-quality data from existing patient registries.
Our aims are in line with the EMA initiative for patient registries and are consistent with discussions at the EMA workshop “How to make better use of patient registries to collect high-quality data on medicines” held in London on October 28th, 2016 in London.
EuroSpA RCN Scope
Currently the collaboration consists of 19 registries (see map).
There is a recognized openness to include other interested registries and to other parties such as health authorities (EMA and local regulatory bodies) and patient organizations, although the extent of their involvement will need to be further defined.
Acknowledgements
Novartis Pharma AG for supporting the EuroSpA collaboration.
UCB Biopharma SRL for supporting the EuroSpA collaboration.
Registries that contribute data to the collaboration
ARC (Netherlands)
ATTRA (Czech Republic)
BIOBADASER (Spain)
Biorx.si (Slovenia)
BSRBR-AS/BSR-PsA (United Kingdom)
DANBIO (Denmark)
ERSBTR (Estonia)
GISEA (Italy)
ICEBIO (Iceland)
NOR-DMARD (Norway)
RABBIT-SpA (Germany)
Reuma.pt (Portugal)
ROBFIN (Finland)
RRBR (Romania)
SCQM (Switzerland)
SRQ (Sweden)
TURKBIO (Turkey)
UCRCR (Crete)
POL-DMARD (Poland)
The most recent EuroSpA publications
EuroSpA publication A1.4
Predictors of Secukinumab Treatment Response and Continuation in Axial Spondyloarthritis: Results From the EuroSpA Research Collaboration Network Click here to access full [...]
EuroSpA publication A2.2
Disparities in the organisation of national healthcare systems for treatment of patients with psoriatic arthritis and axial spondyloarthritis across Europe Click here [...]
EuroSpA publication B0
Imaging in a cohort of real-world patients with spondyloarthritis from five European countries – protocol for the European Spondyloarthritis Research Collaboration Network (EuroSpA) imaging [...]
EuroSpA publication D2.1
Handling of missing component information for common composite score outcomes used in axial spondyloarthritis research when complete-case analysis is unbiased Click here [...]
EuroSpA publication U1.1
Challenge of missing data in observational studies: investigating cross-sectional imputation methods for assessing disease activity in axial spondyloarthritis Click here to access [...]
To see full list, please click Publications in top menu
EuroSpA Research Collaboration Network explained by chairpersons Professor Merete Lund Hetland and Professor Mikkel Østergaard
Why is it meaningful to be a part of EuroSpA? – an interview with 8 members of the Scientific Committee
EuroSpA meetings
EuroSpA Scientific Committee consists of representatives from the 19 participating registries, who meets for hybrid meetings twice yearly in Copenhagen and online.
EuroSpA F2F meeting, Spring 2025
EuroSpA F2F meeting, Spring 2024
