The aim of the EuroSpA Research Collaboration Network
The aim of the EuroSpA Research Collaboration Network (RCN) is to jointly address research questions in SpA including, but not limited to, real world effectiveness and safety profiles of biologic therapies. This is done by retrospectively and prospectively collecting real life patient data from European registers.
The collaboration promotes opportunities to identify unmet needs in the treatment of SpA patients by utilizing high-quality data from existing patient registries.
Our aims are in line with the EMA initiative for patient registries and are consistent with discussions at the EMA workshop “How to make better use of patient registries to collect high-quality data on medicines” held in London on October 28th, 2016 in London.
EuroSpA RCN Scope
Currently the collaboration consists of 19 registries (see map).
There is a recognized openness to include other interested registries and to other parties such as health authorities (EMA and local regulatory bodies) and patient organizations, although the extent of their involvement will need to be further defined.
Acknowledgements
Novartis Pharma AG for supporting the EuroSpA collaboration.
UCB Biopharma SRL for supporting the EuroSpA collaboration.
Registries that contribute data to the collaboration
ARC (Netherlands)
ATTRA (Czech Republic)
BIOBADASER (Spain)
Biorx.si (Slovenia)
BSRBR-AS/BSR-PsA (United Kingdom)
DANBIO (Denmark)
ERSBTR (Estonia)
GISEA (Italy)
ICEBIO (Iceland)
NOR-DMARD (Norway)
RABBIT-SpA (Germany)
Reuma.pt (Portugal)
ROBFIN (Finland)
RRBR (Romania)
SCQM (Switzerland)
SRQ (Sweden)
TURKBIO (Turkey)
UCRCR (Crete)
POL-DMARD (Poland)
The most recent EuroSpA publications
EuroSpA publication U1.1
Challenge of missing data in observational studies: investigating cross-sectional imputation methods for assessing disease activity in axial spondyloarthritis Click here to access [...]
EuroSpA publication D4.1
Differences in the response to TNF inhibitors at distinct joint locations in patients with psoriatic arthritis: results from nine European registries Click [...]
EuroSpA publication A1.5
Four-year secukinumab treatment outcomes in European real-world patients with axial spondyloarthritis and psoriatic arthritis Click here to access full article [...]
EuroSpA publication A4.1
Recording of non-musculoskeletal manifestations, comorbidities and safety outcomes in European spondyloarthritis registries: a survey Click here to access full article [...]
EuroSpA publication D8.2
Impact of patient characteristics on ASDAS disease activity state cut-offs in axial spondyloarthritis: results from nine European rheumatology registries Click here to [...]
To see full list, please click Publications in top menu
EuroSpA Research Collaboration Network explained by chairpersons Professor Merete Lund Hetland and Professor Mikkel Østergaard
Why is it meaningful to be a part of EuroSpA? – an interview with 8 members of the Scientific Committee
EuroSpA meetings
EuroSpA Scientific Committee consists of representatives from the 19 participating registries, who meets for hybrid meetings twice yearly in Copenhagen and online.
EuroSpA F2F meeting, Spring 2025
EuroSpA F2F meeting, Spring 2024
